Ethics in Health Care: Citizens’ Empowerment, Participation and Information. Roads to development? - The article underlines how techniques, rules, rights and ethics constitute, or could, a set of requirements and conditions needed to give shape to a legitimate clinical experimentation on human beings and, in particular, on subjects considered vulnerable. The article focuses on the relation between doctors, researchers, bio-ethic experts, lawyers, pharmaceutical promoters and citizens. It presents the heterogeneous knowledge and interests in ethical issues regarding health care, with overlapping of equity and equality in terms of access to clinical experimentation, as well as citizens’ difficulty in comprehending clinical experimentation and its effects. Finally, the study conducted with the focus group technique leads to a model that allows citizens and non-specialists to talk about participation and responsibility regarding clinical experimentation.
L’etica in sanità: empowerment, partecipazione e informazione dei cittadini. Quali sviluppi?
CERSOSIMO, Giuseppina
2009-01-01
Abstract
Ethics in Health Care: Citizens’ Empowerment, Participation and Information. Roads to development? - The article underlines how techniques, rules, rights and ethics constitute, or could, a set of requirements and conditions needed to give shape to a legitimate clinical experimentation on human beings and, in particular, on subjects considered vulnerable. The article focuses on the relation between doctors, researchers, bio-ethic experts, lawyers, pharmaceutical promoters and citizens. It presents the heterogeneous knowledge and interests in ethical issues regarding health care, with overlapping of equity and equality in terms of access to clinical experimentation, as well as citizens’ difficulty in comprehending clinical experimentation and its effects. Finally, the study conducted with the focus group technique leads to a model that allows citizens and non-specialists to talk about participation and responsibility regarding clinical experimentation.I documenti in IRIS sono protetti da copyright e tutti i diritti sono riservati, salvo diversa indicazione.