Genetic Cardiomyopathies are chronic diseases involving physical and psycho-social issues which imply the need to involve the patient in care relationships with their doctors across all the life-span. For the present study, consultations of 45 adult patients affected by cardiomyopathies (15 at their first consultation, 15 at their 1-year follow up and 15 at 10-year follow-up) were audio-recorded, transcribed and coded considering differences in doctors’ and patients’ roles in terms of word-count, type of questions and answers performed. Results show that doctor narrative is prone to decrease from first consultation to both follow-ups (F(2,42)= 4.631; p=.01), with a lower level of anamnestic dialogue in follow-ups (F(2,42)= 4.055, p=.02). At the same time, patients increase in follow-ups the number of questions to doctors (F(2,42)= 3.339, p=.04). The first consultation acquires the meaning of a diagnostic meeting in which doctors narrate and ask more, preferring an anamnestic script characterized by sequence of new questions. In this scenario, patients don’t find the space to ask their doctors for explanations or clarifications. Follow-up visits, on the other hand, allow the patient the opportunity to narrate their illness experience, acquiring an active role in care relationship.
Exploring narratives to investigate doctor-patient relationship in the care path for genetic cardiomyopathies
Fioretti Chiara
;
2022-01-01
Abstract
Genetic Cardiomyopathies are chronic diseases involving physical and psycho-social issues which imply the need to involve the patient in care relationships with their doctors across all the life-span. For the present study, consultations of 45 adult patients affected by cardiomyopathies (15 at their first consultation, 15 at their 1-year follow up and 15 at 10-year follow-up) were audio-recorded, transcribed and coded considering differences in doctors’ and patients’ roles in terms of word-count, type of questions and answers performed. Results show that doctor narrative is prone to decrease from first consultation to both follow-ups (F(2,42)= 4.631; p=.01), with a lower level of anamnestic dialogue in follow-ups (F(2,42)= 4.055, p=.02). At the same time, patients increase in follow-ups the number of questions to doctors (F(2,42)= 3.339, p=.04). The first consultation acquires the meaning of a diagnostic meeting in which doctors narrate and ask more, preferring an anamnestic script characterized by sequence of new questions. In this scenario, patients don’t find the space to ask their doctors for explanations or clarifications. Follow-up visits, on the other hand, allow the patient the opportunity to narrate their illness experience, acquiring an active role in care relationship.I documenti in IRIS sono protetti da copyright e tutti i diritti sono riservati, salvo diversa indicazione.
